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Name |
Position |
Date Agreed |
Review Date |
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Mr Alan Paul |
NSSG Chair |
Nov 2011 |
November 2013 |
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Mr Sean Duffy |
YCN Board Chair |
Dec 2011 |
November 2013 |
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DATASET
The agreed dataset currently consists of 2 sections:
- Cancer Waiting Times
All Trusts are collecting the full Going Further on Cancer Waits dataset as
published in DSCN 20/2008
- Cancer Registration Dataset
The mandation to collect the cancer registration dataset
was published in the Cancer Reform Strategy and subsequently included in the National Contract for Acute Services.
All Trusts are working towards the full electronic submission of the cancer registration
dataset by the end of March 2011. Detailed action plans are currently being agreed
between Trusts and NYCRIS (Northern and Yorkshire Cancer Registry and Information Service).
COLLECTION RESPONSIBILITY
- Each Team is responsible for collecting the sections of the dataset that relate to their
direct management of the patient.
- All data items should be collected at the most relevant part of the patient pathway.
- Core MDT members should provide appropriate clinical input for MDT data collection
by co-ordinators/data managers.
- Data should be stored in an electronic format to allow upload into approved
national systems and databases.
- Storage and transfer of patient identifiable information should adhere to all
relevant National guidance and also local Trust policies.
- When a patient is referred between Teams for specialist investigations or treatment then it
is the responsibility of the specialist MDT Team to transfer the relevant dataset they
collect during their care of the patient back to the referring MDT Team.
- For the purposes of the NSSG audit programme it is the responsibility of each Team to
report all patients that begin their cancer pathway in their Trust even though the
patients may not receive their specialist treatment from that first Team. This is
why the data transfer policy is of particular importance.
- The situation is slightly different for Cancer Waiting Times (CWT) data collection.
- If the patient is an Urgent GP Referral (2 week wait or Urgent Suspected Cancer)
then the Trust that receives that referral and first sees the patient is
responsible for collecting and uploading the appropriate CWT dataset.
- Trusts are also responsible for uploading the treatment section of
the CWT dataset for all patients they provide first treatment for.
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