Improving Outcomes Guidance
Improving Outcomes in Children and Young People with Cancer

NICE has developed guidance on the healthcare that should be provided to children and young people with cancer. NICE recognises that the needs of children and young people with cancer are different from those of older adults with cancer. For example, during childhood and adolescence, physical changes occur that may affect the type of cancer present, how it needs to be treated, and how well the treatment works. Children and young people also undergo psychological changes that may influence their emotional response during and after treatment.

The aim of this guidance is to ensure that children and young people with cancer get the best possible care and the care that is most appropriate for their age.

The key recommendations are:

Care should be coordinated across the whole of the NHS and be available as close to the patient’s home as possible

Cancer networks should ensure that they meet the needs of children and young people with cancer

Multidisciplinary teams should provide cancer care

Each child or young person with cancer should have a key worker

Care should be appropriate to the child’s or young person’s age and type of cancer

Time in the operating theatre and a children’s anaesthetist should be available when needed

Children and young people with cancer should be offered the chance to take part in research trials

Treatment should be based on agreed protocols

A register of all cancers in people aged 15–24 should be urgently considered

Cancer networks should ensure there are sufficient specialist staff

Improving Outcomes for Children and Young People with Cancer - The Manual

This is the central document that provides recommendations about the organisation and delivery of children and young people with cancer services.


Improving Outcomes for Children and Young People with Cancer - The Research Evidence

This is a summary of the research evidence that informed the development of the recommendations in the manual.


Healthcare Services for children and young people with cancer - Information for the Public

This document summarises the key recommendations of the manual. It is in an easy to read style, and may be used in local patient information leaflets or any other suitable publication.
home
groups
groups
Lung 
Gynaecology 
Breast 
Upper GI 
Urology 
Haematology 
Colorectal 
Head & Neck 
Skin 
Sarcoma 
Brain 
Prostate