 |
| childrens cancer information pathway |
| pathway version | pathway first published | pathway due for review | links last updated | full pdf version |
| 2.1 | 18 August 2010 | 18 August 2012 | 04 January 2012 |
15 |
| PATHWAY STAGE | INFORMATION RESOURCES TO BE OFFERED TO PATIENTS |
| Referral | Departmental Overview (LTHT) |
| Welcome to Ward 76 - Information for parents and carers (LTHT) | |
| Outpatients and Day Care (Oncology) (LTHT) | |
| Teenage and Young Adults Service (LTHT) | |
| Meet the Team - Key Worker and Departmental Contacts (LTHT) | |
| The Leeds Brain Tumour Service (LTHT) | |
| Introducing shared care (LTHT) |
| Diagnosis of Cancer | A Parent's Guide to Children's Cancers (cancerbackup) |
| Written summary of diagnosis and treatment plan (Local) | |
| Disease specific information sheet/booklet (Local) | |
| A Guide to Clinical Trials for Parents and Young People (CCLG) | |
| Biological Studies and Tumour Banking (CCLG) | |
| Cancer Registration for Children and Young People (CCLG) |
| Treatment | A Parent's Guide to Children's Cancers (cancerbackup) |
| Treatment (Clinical) | Individualised treatment schedule including timing, nature of toxicity, monitoring and disease reassessment points (Local) |
| Parent information for central lines (LTHT) | |
| Side Effects of Treatment - A Parent's Guide (LTHT) | |
| Introducing shared care (LTHT) | |
| Helping Your Child to Eat (CCLG) | |
| Eat booklet (LTHT) | |
| Chemotherapy General | |
| Radiotherapy | A Parent's Guide to Radiotherapy (LTHT) |
| Radiotherapy Fact Sheets (CCLG) | |
| Bone marrow transplant | Parent information - Allogeneic Stem Cell Transplantation (LTHT) |
| Welcome to Ward 77 (Bone Marrow Transplantation Unit) (LTHT) | |
| Living with treatment | Getting the Best from the Internet – A Guide to Childhood Cancer Resources online (CCLG) |
| How to help brothers and sisters (CCLG) | |
| Children with Cancer and Pets (CCLG) | |
| The Hospital School Service (LTHT) |
| End of Treatment | End of Treatment - What Happens Next? (CCLG) |
| Individualised End of Treatment Summary including timing and nature of follow up schedule (LTHT) | |
| Follow-up (CCLG) |
| Long Term Follow-up | Paediatric, Teenage and Young Adult Oncology and Haematology Long Term Follow-up (Local) |
| What's the Point of Coming to Clinic (CCLG) | |
| Looking Forward (CLIC Sargent) | |
| After Cure Booklet (CCLG) | |
| After Cure Summary Card (CCLG) | |
| After Cure Factsheets (CCLG) |
| Recurrence, Relapse and Advanced Disease | Individual treatment plan and key worker contact details (Local) |
| Palliative Care | Choices (CCLG) |
| Facing the Death of Your Child (CCLG) | |
| When there is no Longer a Cure (CLIC Sargent) |
| End of Life and Bereavement | After the Death of a Child (Local) |
| Bereavement - Where to get help (CCLG) | |
| When Your Child Has Died (CLIC Sargent) | |
| Living Without Your Child (CLIC Sargent) | |
| In Your Own Words (CLIC Sargent) |
