pancreas cancer information pathway

pathway version pathway first published pathway due for review links last updated full pdf version
1.0 09 June 2009 09 June 2009 15 November 2011 363



PATHWAY STAGE INFORMATION RESOURCES TO BE OFFERED TO PATIENTS


General Awareness

Screening

Signs & symptoms discovered

GP visit
Lifestyle and Cancer – Reduce the Risks (Cancer Research UK (CRUK))
Are You Worried About Cancer? (cancerbackup)
NHS Direct card (NHS Direct)
Signpost to further local and national information services (Local)


Referred for tests and investigationsUrgent suspected cancer referral process (Local)
Local key contact - GP / secondary care (Local)
NHS ‘Questions to Ask’ (Department of Health)
Ultrasound (Local)
CT Scan (Local)


Diagnosis of CancerThe Cancer Guide (Macmillan Cancer Support)
Cancer information and support services in YCN (YCN)
NHS ‘Questions to Ask’ (Department of Health)
Individual treatment plan and key worker contact details (Local)
Signpost to further local and national information services (Local)
Local and national information for carers (Local)
Multi-disciplinary Team (MDT) (Local)
Understanding Cancer of the Pancreas (cancerbackup)
Nutritional advice from local dieticians (Local)
Welfare provision and benefits advice (Local)
Record of Consultation (Local)
Upper GI Cancer Services (Local)
Key worker and additional contact details (Local)


Referred for treatment including further investigationsNHS ‘Questions to Ask’ (Department of Health)
Signpost to further local and national information services (Local)
Practical Information including transport, parking, travel, hospital infections, attending or being admitted to hospital (Local)
Referral to Leeds Booklet (LTHT)
What can I Claim? (Local)
ProceduresERCP and Biliary Stent (Local)
PTC (percutaneous transhepatic cholangiogram) (Local)
Having a Biliary Stent Inserted (Local)
EUS (endoscopic ultrasound scan) (Local)
PET Scan (Local)
Change of Key Worker (Local)
Curative surgerySurgical Procedure - Whipple's (Local)
Diet after surgery to the pancreas (Local)
Post Surgery Information (Local)
Change of Key Worker (Local)
Adjuvant ChemotherapyChemotherapy for pancreatic cancer (cancerbackup)
Trial specific information (Local)
Fluorouracil (5FU) (cancerbackup)
Fluorouracil (5FU) (Local)
Palliative chemotherapyChemotherapy for pancreatic cancer (cancerbackup)
Trial specific information (Local)
Fluorouracil (5FU) (cancerbackup)
Fluorouracil (5FU) (Local)
Gemcitabine (Gemzar®) (cancerbackup)
Gemcitabine (Gemzar®) (Local)
Capecitabine (Xeloda®) (cancerbackup)
Capecitabine (Xeloda®) (Local)
Palliative radiotherapyUnderstanding Radiotherapy (cancerbackup)
Coming for Radiotherapy (LTHT)
Skin Care and your Radiotherapy (LTHT)
Trial specific information (Local)


Survivorship, Follow Up and Living With CancerHow to access local services, key contact details, discharge / follow up (Local)
NHS ‘Questions to Ask’ (Department of Health)
Signpost to further local and national information services (Local)
Local Pancreatic Support Group details (Local)
Pancreatic Cancer UK (Pancreatic Cancer UK)
Hello and How are you? (Macmillan Cancer Support)


Recurrence, Relapse and Advanced DiseaseNHS ‘Questions to Ask’ (Department of Health)
Individual treatment plan and key worker contact details (Local)
Signpost to further local and national information services (Local)
Benefits and welfare information local provision (Local)
Referral to hospital benefits services (Local)
Macmillan Benefits Helpline details (Macmillan Cancer Support)
Help with the Cost of Cancer (Macmillan Cancer Support)
Palliative Chemotherapy (Local)
Coping with Advanced Cancer (cancerbackup)
Practical Help in Advanced Cancer (cancerbackup)
Emotional Support in Advanced Cancer (cancerbackup)


Palliative CareNHS ‘Questions to Ask’ (Department of Health)
Local service provision (Local)
Signpost to further local and national information services (Local)
Change of Key Worker (Local)
Community Macmillan Teams (Local)


End of LifeEnd of Life the Facts (Marie Curie Cancer Care)


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