sarcoma cancer information pathway

pathway version pathway first published pathway due for review links last updated full pdf version
2.0 15 November 2011 15 November 2012 16 November 2011 45



PATHWAY STAGE INFORMATION RESOURCES TO BE OFFERED TO PATIENTS


General Awareness

Screening

Signs & symptoms discovered

GP visit
Lifestyle and Cancer – Reduce the Risks (Cancer Research UK (CRUK)) 
Are You Worried About Cancer? (cancerbackup) 
NHS Direct card (NHS Direct) 
Signpost to further local and national information services (Local) 


Referred for tests and investigationsUrgent suspected cancer referral process (Local) 
Local key contact - GP / secondary care (Local) 
NHS ‘Questions to Ask’ (Department of Health) 
Core Biopsy (Local) 
MRI (Local) 
CT Scan (Local) 
Ultrasound (Local) 


Diagnosis of CancerThe Cancer Guide (Macmillan Cancer Support) 
Sarcoma Nurse Specialist - Information and support for sarcoma patients (LTHT) 
Cancer information and support services in YCN (YCN) 
NHS ‘Questions to Ask’ (Department of Health) 
Individual treatment plan and key worker contact details (Local) 
Signpost to further local and national information services (Local) 
Local and national information for carers (Local) 
Who Are We? (Sarcoma UK) 
Want to Understand Sarcoma? (Sarcoma UK) 
GIST Support UK (Sarcoma UK) 
Retroperitoneal Sarcoma (Sarcoma UK) 
Gynaecological Sarcoma (Sarcoma UK) 


Referred for treatment including further investigationsNHS ‘Questions to Ask’ (Department of Health) 
Signpost to further local and national information services (Local) 
Practical Information including transport, parking, travel, hospital infections, attending or being admitted to hospital (Local) 
SurgeryPreparing for your operation (LTHT) 
You and your anaesthetic (Local) 
Pain relief after your operation (LTHT) 
About your consent form (Local) 
Infection control (Local) 
Role of Sarcoma Physiotherapists (LTHT) 
Following Surgery (Sarcoma UK) 
RadiotherapyRadiotherapy for patients with sarcoma (LTHT) 
Late Effects of Radiotherapy (LTHT) 
Chemotherapy GeneralPatient information and personal treatment record (LTHT) 


Survivorship, Follow Up and Living With CancerHow to access local services, key contact details, discharge / follow up (Local) 
NHS ‘Questions to Ask’ (Department of Health) 
Signpost to further local and national information services (Local) 


RecurrenceNHS ‘Questions to Ask’ (Department of Health) 
Individual treatment plan and key worker contact details (Local) 
Signpost to further local and national information services (Local) 
Advanced Sarcoma (Sarcoma UK) 


Palliative CareNHS ‘Questions to Ask’ (Department of Health) 
Local service provision (Local) 
Signpost to further local and national information services (Local) 


End of LifeEnd of Life the Facts (Marie Curie Cancer Care) 


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