Upper Gastrointestinal and hepatobiliary cancers. All stages.
aims/objectives:
The CNS and dietetic team developed a follow-up / diagnostic service.
The service allows patients to meet with their CNS and dietetic team throughout their diagnostic pathway. Follow-up post surgical treatment is also provided.
The team aim to meet the on going supportive care needs of patients along with a individual
approach to follow-up care and survivorship.
The team are working with the Oncology team and 4th year medical students to look at the
specific care needs of patients at different points of their post treatment pathway.
Individual care packages will be developed to meet the survivorship needs of individual patients. A move away from the "one size fits all" approach to follow-up care.
evaluation:
To be confirmed.
Name:
Veronica Allinson
Organisation:
Yorkshire Cancer Network
email:
telephone:
01422 222722
start:
June 2011
duration:
2 years
funded by:
Yorkshire Cancer Network
cancer sites:
Low to moderate risk breast cancer patients
aims/objectives:
A pilot study ,supported and run in collabouration with the YCN, Breast Cancer Care
and the University of Huddersfield has run over two years, providing an alternative
to hospital based, routine follow-up for low to moderate risk breast cancer patients.
The study providing a taught course aimed at empowering patients to better cope
with the effect and the impact of cancer trearments as well as a better understanding
of the signs of possible recurrence.This aimed to ensure that the patient was
confident to self manage without hospital follow-up. Evaluations were collected
after each taught session, timed questionniars over a three year period, and
six monthly free script diaries provided the data for evaluating the service.
Early results indicated that providing an educational programme is at the least,
no worse than hospital follow-up and has the potential to provide a better quality
service , releasing clinic staff, time and funds for patients requiring greater
clinical input. The study concluded that this service was both acceptable and
evaluated very well as an alternative to hospital based routine follow-up and fit
well within the suvivorship framework.
The project aims are to follow through a roll out in the network of the educational
programme and open follow-up policy that has been provided routinely in the
Calderdale and Huddersfield NHS Foundation Trust hospitals for the past year.
The two year project is to to provide assistance in each breast unit in the network
to set up and establish their own educational programme suited to the needs of
their population group and numbers.
evaluation:
The pilot study, which completed recruitment last year conrinues with data
collection for another couple of years. The service has run at the CRH/HRI
sites as routine practice for a year and is being evaluated with a
questionnaire this year (2011).
It is anticipated that each new set up
area will evaluate their practice annually also.
Name:
Sadie Smith
Organisation:
The Robert Ogden Macmillan Centre, St James's Hospital, Leeds
email:
telephone:
0113 2066498
start:
2008
duration:
ongoing
funded by:
Robert Ogden Centre Trust Funds
cancer sites:
All cancer sites, usually end of treatment but not exclusively
aims/objectives:
Macmillan New Perspectives self managment course.
6 week programme. 2 1/2 hrs each week.
Sessions are informal, friendly and free;
-share experience.
-gain confidence.
-learn skills to help manage symptoms and stress.
3 course held each year at The Robert Ogden Macmillan Centre
evaluation:
All participants complete evaluation at end of course.
Name:
Sadie Smith
Organisation:
The Robert Ogden Macmillan Centre, St James's Hospital, Leeds
email:
telephone:
0113 2066498
start:
2011
duration:
ongoing
funded by:
Robert Ogden Centre Trust Funds
cancer sites:
For carers at any stage
aims/objectives:
Macmillan Hope self managment course
6 week programme. 2 1/2 hrs each week.
A course for carers.
Are you supporting someone with cancer, emotionally and or physically?
The course gives you an opportunity to explore with tutors and other
participants issues that may arise when you are supporting someone through cancer.
evaluation:
All participants complete evaluation at end of course.
